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  • Promoting High-Impact Alzheimer's Disease Research

2023 Alzheimer's Disease Registry Conference and Mentoring Workshop

Conference registration and workshop applications are now open for the 2023 National Conference on High-Impact Alzheimer's Disease Registry Research and the High-Impact Alzheimer's Disease Registry Research Workshop for Scholars of Color!

The National Conference on High-Impact Alzheimer's Disease Registry Research will be on Friday, March 31, 2023. This conference is 100% virtual and is open to anyone who is interested in learning, collaborating, or networking in the area of Alzheimer’s Disease Registries. The conference is designed to advance the science on Alzheimer’s disease and related dementias (ADRD) disparities by increasing the pipeline of underrepresented minority/minoritized (URM*) scholars in conducting population-based research with statewide registries.  Conference presentations will offer an overview of the existing statewide Alzheimer’s Disease registries in the United States, their potential impact on aging policies and initiatives, and how to engage stakeholders in registry research. 

The High-Impact Alzheimer's Disease Registry Research  Workshop for Scholars of Color is desgined for underrepresented/minoritized (URM*) scholars who are interested in developing a research project using Alzheimer’s disease Registry data with the support of a mentor. This in-person workshop will be held on Friday, July 14, 2023 on the campus of the University of South Caorlina in Columbia, SC. The purpose of the workshop is to introduce scholars to the data that are available in the registries, brainstorm project ideas, network with other scholars, and identify senior mentors. The primary goal of this opportunity is to provide a mechanism for senior faculty/experts to mentor junior URM scholars in Alzheimer’s Disease registry research through submission of a 1) conference abstract to the 2024 National Conference on High-Impact Alzheimer’s Disease Registry Research and 2) manuscript to an academic journal within the next 12 months. No prior experience conducting research using secondary data is required.

As a scholar invited to attend the workshop you will be reimbursed for travel, room and board, per diem, and childcare costs. The workshop will be held on the campus of the University of South Carolina. To be considered for this opportunity, there is a brief application** to complete by June 1, 2023.

For more information on this worskhop, including eligibility criteria, travel, lodging and reimbursement, please reveiw the Frequently Asked Questions (FAQ) section below. 

*URM is defined as persons from racial and ethnic groups that have been shown to be underrepresented in biomedical research. This includes Blacks, African Americans, Hispanics, Latinos, American Indians, Alaska Natives, Native Hawaiians, and other Pacific Islanders.

**Responses to the workshop application questions may be prepared in advance. The application cannot be saved and resumed later. 

Register now for the 2023 Virtual Conference!

Apply now to attend the 2023 Workshop!

If you have any questions, please contact Quentin McCollum (mccolluq@email.sc.edu).  

2023 Conference Speakers

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Julie M. Zissimopoulos, PhD, is a Professor in the Sol Price School of Public Policy at the University of Southern California. In addition to her faculty appointment, she is Senior Fellow and Director of Aging and Cognition Research Program and Research Training at the Schaeffer Center for Health Policy and Economics. She is a Principal Investigator of USC’s Resource Center for Minority Aging Research (USC AD RCMAR), and Center for Advancing Sociodemographic and Economic Study of Alzheimer’s Disease and Related Dementias (CeASES-ADRD), both focused on reducing burden of Alzheimer’s disease and funded by the National Institute on Aging. Dr. Zissimopoulos’ current research focuses on medication adherence, insurance design, medical expenditures, with a special emphasis on economic costs of dementia, the use of and response to drug therapies for non-dementia conditions that influence risk of dementia; racial and ethnic disparities in diagnosis and health care treatment for dementia; and improved methods for population measures of dementia. Published research appeared in Journal of the American Medical Association Neurology, Journal of Gerontology Social Science, Journal of the American Academy of Arts and Sciences, Journal of Health Economics and Alzheimer’s and Dementia. Dr. Zissimopoulos received her B.A. summa cum laude from Boston College, her M.A. from Columbia University, and a Ph.D. in economics from the University of California, Los Angeles.

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Greta Brown, BA,  is a native of South Carolina and a graduate of the University of South Carolina, where she earned a Bachelor of Arts degree in English with a focus in writing and communication.  Ms. Brown began her career as an editorial assistant with the international publication SCIENCE in Washington, DC.  She would later take her communication skills to Atlanta where she spent nearly 10 years in development within the broadcasting industry.

Ms. Brown joined the Alzheimer’s Association in February (2020) as the Manager of Programs and Education with oversight of all care and support initiatives throughout the 21 counties that comprise West Tennessee.  Greta was appointed to the national Research Champion division of the Association in 2021 and served as one of two research representatives for the region comprising TN, AL, LA, and MS.

In August of this year, Ms. Brown was promoted to a national role with the Alzheimer’s Association and began serving as the Senior Associate Director of Community Engagement.  She is charged with oversight and support of community education and support outreach across 17 states.

Greta is a member of The International Society to Advance Alzheimer’s Research & Treatment (ISTAART), The American Association for the Advancement of Science, The Professional Network on Aging of the Midsouth, and The American Communication Association.

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Susan Aguinaga, PhD, is an assistant professor in the Department of Kinesiology and Community Health at the University of Illinois at Urbana-Champaign. She is committed to advancing scientific knowledge that addresses health disparities in cognition and dementia-related diseases through community-based physical activity and dietary interventions. Through her research, she creates culturally appropriate physical activity and dietary interventions for racially and ethnically diverse older adults with cognitive impairment and those at risk for cognitive decline. 

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Ney Alliey-Rodriguez, MD, is a clinical and translational investigator of neuropsychiatric disorders, with a special focus on genetic factors affecting neurodegeneration and aging. He earned his medical degree and completed his residency in psychiatry at Universidad del Zulia (Venezuela), and did postdoctoral work in Psychiatric Genetics at The University of Chicago. Dr. Alliey-Rodriguez joined the South Texas Alzheimer’s Disease Research Center at the University of Texas Rio Grande Valley in 2021, to study factors associated with the increased risk of dementia in Latinos.

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Rana Bayakly, MPH, is the Chief Epidemiologist at the Georgia Department of Public Health, Chronic Disease, Health Behaviors and Injury Epidemiology Section.  She is also the Principal Investigator for the Georgia Violent Death Reporting System and is the Director of the Georgia Comprehensive Cancer Registry. Ms. Bayakly manages the Georgia Alzheimer Disease and Other Related Dementia (ADRD) registry.

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Candace Brown, PhD, is an assistant professor of gerontology in the Department of Public Health Sciences at the University of North Carolina, Charlotte (UNCC). She holds affiliate appointments in the Gerontology Program and Department of Sociology at UNCC and is a collaborative researcher with the Motivated Cognition and Aging Brain Lab at Duke University. Her research passion is to examine motivation to exercise across the lifespan. She is currently working with Amissa, Inc., in the development of a smartphone app designed to assist caregivers in monitoring persons with dementia.

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Jose E. Cabrero Castro, PhD, MSc, MD, is a postdoctoral fellow at the University of Texas Medical Branch in the Department of Nutrition, Metabolism, & Rehabilitation Sciences and the Sealy Center on Aging. Dr. Cabrero has a PhD in Health Care Management and Policy from the National Autonomous University of Mexico. He has served as Head of the Health Economics Division, Deputy Director of Patient Safety, and Deputy Director of Childhood Cancer at the Ministry of Health of Mexico. Currently, Dr. Cabrero is conducting projects related to ADRDs and health services utilization.

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Ethyln McQueen-Gibson, DNP, MSN, RN-BC, is an associate professor in the School of Nursing and Director for the Center for Gerontology and Minority Aging at Hampton University. She has practiced nursing for over 40 years and has served as a commissioned officer in the US Army Nurse Corps. Dr. Gibson currently serves on the Virginia Governor’s COVID-19 Task Force for Long Term Care, is President-Elect for the Southern Gerontological Society, and is a Board Member for the Peninsula Agency on Aging in Hampton, VA.

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Maggi Miller, MS, PhD, is a research assistant professor in the Department of Epidemiology and Biostatistics and the South Carolina Alzheimer’s Disease Registry Manager. She is also co-director of the UofSC Office for the Study of Aging which houses the oldest and most comprehensive Alzheimer’s Disease Registry in the U.S. Her research interests include Alzheimer’s disease and related dementias and caregivers of individuals with dementia.

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Bernard Schreurs, PhD, is a professor in the School of Medicine in the Department of Neuroscience and Rockefeller Neuroscience Institute at West Virginia University. He is the director of the West Virginia Alzheimer’s Disease Registry at West Virginia’s School of Medicine in the Physiology and Pharmacology department. Dr. Schreurs’ research focuses on learning and memory, synaptic plasticity, and preclinical models of Alzheimer’s disease and post-traumatic stress disorder.

Workshop Frequently Asked Questions

Eligible applicants must:

  • Be a member of a racial/ethnic group that has been underrepresented in biomedical research
  • Have a terminal degree
  • Have received their terminal degree within the past 10 years 

Scholars who are selected to attend the workshop will be reimbursed for three-night travel related costs to include airfare, hotel, incidentals, and child/family care. The conference coordinator will contact scholars with additional details regarding the Travel Authorization (TA) form before you are permitted to finalize your arrangements.

To best prepare for the workshop, scholars should review the 2022 Promoting High-Impact Alzheimer’s Disease Research Conference session recordings entitled “Introduction to Statewide Alzheimer’s Registries” and “Research Guided by Statewide Alzheimer's Disease Registries”. All conference session recordings are available on the CCADMR in the “Conference Session Recordings” section below.

Each scholar will be assigned two mentors.

The workshop will be held on the campus of the University of South Carolina (USC), located in Columbia, SC.

To facilitate lodging arrangements, a room block will be reserved at the Courtyard by Marriott Columbia Downtown at USC. Reimbursements for lodging will be made for up to $350/night.

Scholars will be asked to make their own travel arrangements and keep all receipts to be submitted to the Program Coordinator for processing of reimbursements. The TA form will need to be approved before finalizing travel arrangements.

Final decisions about selected scholars will be made by June 15th.

No, this is an in-person only event.

Applicants are not required to have a project idea before applying for or attending the workshop.

A limited number of scholars will be selected in order to ensure an interactive and engaging workshop experience. 

Conference Session Recordings

If you missed our conference or want to revisit a particular conference presentation, please see below for all  of the recorded sessions that were part of the National Conference on High-Impact Alzheimer's Disease Registry Research.

Conference Welcome

Conference Keynote:  Diveristy in Alzheimer's Disease Research: The Role of a Research Registry

Speaker: Roland J. Thorpe Jr., PhD (Co-Director, Johns Hopkins Alzheimer's Disease Resource Center for Minority Aging Research)

Conference Session 2: Introduction to Statewide Alzheimer's Disease Registries

Speakers: Rana Bayakly, MPH (Georgia Alzheimer's Disease Registry); Maggi Miller, PhD (South Carolina Alzheimer's Disease Regsitry); Bernard Schreurs, PhD (West Virginia Alzheimer's Disease Regsitry)

Conference Session 3: Research Guided by Statewide Alzheimer's Disease Registries

Speakers: Nicole Davis, PhD (Clemson University); Miriam Evans, EdD (South Carolina State University) 

Conference Session 4: How Alzheimer's Disease Data, Including Registries, Guide State annd National Initiatives

Speakers: Jo Pauling-Jones, MEd (AARP South Carolina); Lisa McGuire, PhD (Centers for Disease Control and Prevention); Taylor Wilson, BA (South Carolina Alzheimer's Association)

Conference Session 5: How Alzheimer's Disease Data, Including Registries, Guide Community Initiatives

Speakers: Megan Byers, LMSW (University of South Carolina); Cheryl Dye, PhD (Clemson University); Caitlin Torrence, MA, MS (Clemson University); Elizabeth Head, MPH (Georgia Department of Public Health)

 


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